Nick has had a couple busy weeks of chemo followed by one week off! Yay for a week off!
Nick spent two weeks getting two shots (one in each thigh) of chemotherapy every Monday, Wednesday and Friday. This particular chemotherapy is the substitute for the one he had the allergic reaction to on Halloween. I was dreading how bad the shots were going to be and have been sideswiped by how hard the chemo has been on instead. Nick has generally handled the majority of his chemo well. Some have made him fairly nauseous but he had never thrown up.
This chemo really knocked him down. He vomited after every chemo shot within about 16 hours. As we moved into this second week of the same treatment the vomiting has become worse and he was sick for a longer duration each time. He threw up his feeding tube and had to have it reinserted. It was really hard to watch him feel so miserable and know he had to do it again 1-2 days later. He has lost part of the weight he had gained which is frustrating but he should be able to gain it back. His next phase will consist of inpatient chemo and we have been told most kids tolerate it fairly well.
In the middle of these 2 weeks of hard chemo there was a bright spot. We were able to surprise Nick with some t-shirts my niece had made to support Nick in his fight against Leukemia. We had a family gathering to surprise Nick with the shirts and I think it really boosted his spirits. It has been so fun to get pictures sent to me from all the friends and family that ordered shirts. They sent us pictures in their shirts for me to share with Nick and I hope to make something with all of them. The love and support from that has been humbling and really helped. It has been super fun for us to see so many people cheering Nick on!
We also had the privilege to attend a Taylorsville High Assembly last Friday to help them Kick off their Charity Week. The SBO choose to benefit Nick for their Charity Week thru Millie's Princess Foundation. Millie's Princess Foundation is a foundation set up to raise hope, funds and awareness for childhood cancer. We have been overwhelmed by the support and love. The students at Taylorsville were so excited to help Nick because Alex is a junior there. The students we have interacted with so far have been so compassionate and sweet with Nick. The Assembly last week was very emotional. It was very uplifting to be there and feel all that love and support.
Nick had this past week off Chemo and it was good for him. He is frustrated daily by his lack of energy and not feeling great. It makes him sad. Fortunately, he has 4 people in this house that love him very much and will spend all their energy trying to boost his spirits. We love him and are so proud of him.
We are so grateful for everyone's love and support! I would like to ask at this time for you to pray for Nick to feel better and be able to get stronger.
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ReplyDeleteWill do. So neat how much support his siblings give, good kids! We wore our shirts but didn't get a picture. Lol I've been trying to get a family picture for 3 years. Know we think of and pray for you all very often.
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