Wedding Fun and the End of Erwinia!!!

Nick with the Bride and Groom

Saturday, May 13th our niece got married and we had a great day celebrating. A beautiful sealing at the temple with a family dinner and then reception. All Bryan's family from Arizona and California were in town, we had a really great weekend. We removed Nick's feeding tube that morning and he has been doing fairly well trying to eat on his own. Some days are better than other days depending how he is feeling!

Love these sweet kids!

Alex, Nick, and Kate looked fabulous! We had a very nice day, it was nice to feel kind of normal for a day! Kate and Bryan danced the father/daughter dance and handsome Alex danced with me for the mother/son dance! We all had fun doing the photo booth! It was fun visiting with family and guests as well!

It was very nice to have a lot of family in town. Nick has especially enjoyed when family has been in town to visit. It's a nice distraction and change to his everyday life right now. Plus he gets sick of hanging with mom. Can you believe that!?







We had Bryan's nephew Dustin (who lived with us when Nick was little) and niece Danielle staying at our house with their spouses. Danylle also has two little boys - Barrett and Briggs. It was fun having little kids around. They are so cute! Barrett adores Nick and it was fun to see the two interacting! Nick was worried Barrett would be afraid of him because of how he looks but didn't phase the sweet kid. That meant a lot to Nick! Thank you Danylle for preparing him!

Nit and Bear! (their nicknames)

Sunday, May 14th was Mothers Day and it was a nice day. My cute family spoiled me and I got he kindest card from my kids. Melted my heart the nice things they wrote! Nick was pretty worn out from the day before and rested most the day. We had all my family and Bryan's family over for a BBQ that night and enjoyed everyones company! Nick also got to have the Home Health nurse access his port and do a CBC to check counts for the next days chemo!

I am so grateful to be a mother and I can't imagine my life without my kids. Its been a hard 9 months but I wouldn't trade it for anything. My kids bring me so much joy! I am so blessed to have them!

Monday, May 15th was clinic day. Nick met counts for his 3rd dose of Methotrexate and Vincristine for this phase of treatment. He also had visits on Wednesday and Friday of that week his last round of Erwinia shots. On Saturday the 20th we were able to get over to Bennion Jr. High for his soccer teams last game of the season. We were so grateful Nick felt good enough to go and it worked out. He really seemed happy there and enjoyed seeing all his friends. I can see how much he is missing soccer. It was a good day.

Razzia Rage- Team Cheer!

Razzia Rage 2016-2017 Season

Monday, May 22nd and Wednesday May 24th Nick went to clinic for Erwinia shots again. On Thursday the 25th he had a Lumbar Puncture and his 4th dose of Methotrexate and Vincristine. Then on Friday the 26th and Sunday the 28th Nick had his last 2 visits for Erwinia.  Five trips to Primary Children's in 7 days. Wow! On Sunday we actually checked into inpatient for the shots- we were there an hour or two but so glad to have them over with. YAY! NO MORE ERWINIA!! Per my calculations Nick has done 10 weeks of Erwinia, at 3 visits a week, 2 shots each time for a total of 60 shots in his thighs.. Not fun... so happy to have those behind us. Between those and his twice a day blood thinning shots this kid has had around 500 shots over the last 9 months.WOW! Told you he was brave!!

We also had a heartwarming experience on Friday after clinic. Nick wanted Su Casa for lunch so we drove to the location on 3rd south. Upon finishing our meal our waitress came over and said someone had paid our bill. It was deeply touching. SO many good, kind people in the world!!

We are trying to get photos with some of the nurses Nick has had the pleasure of getting to know. These are nurses we have had often inpatient and also some that have made a special connection with him. We are blessed to live so close to an outstanding children's hospital and we can not say enough about the nurses that have treated him both inpatient and in clinic. Below is a handful of our favorites from inpatient. We are missing a couple but hopefully we will catch them when we visit again.

Nurse Rachel and Nurse Andrea

Nurse Kate

Nurse Whitney

Nurse Kira

Nurse Christina

Nick has had this week off. It has been a bit of a rough week. Lots of digestive issues due to the Methotrexate and Vincristine. Hope he feels better soon and can enjoy his week. He really wants to feel good enough to do something. That has been the hardest on him, not feeling well most of the time and not being able to do more. Again, thank you for all your love and support. We are eternally grateful!